Everything about Dynamic consent
Dynamic consent is an interactive approach to informed consent in research that enables users to manage their data in real-time. It is designed to address issues raised by the use of digital technologies in research and clinical care, enabling the linkage, analysis and integration of diverse datasets, as well as the application of AI and big data analyses. Dynamic consent was designed to foster better engagement between researchers and participants, giving participants the option to take part or to opt of studies; to improve understanding of how the participants' data is being used, and to increase legal and regulatory requirements for managing the secondary use of data in biobanks and other medical research infrastructures. The approach started to be implemented in 2007 by an Italian group who introduced live interaction between researcher and participant. The use of digital interfaces in this way was first described as 'Dynamic Consent' in the EnCoRe project. Wikipedia →
🧭 Start here: a 6-step reading path
- Read the overview: Dynamic consentA 5-minute orientation
- Skim a recent paper: A rapid review of the benefits and challenges of dynamic consentInfluential work since 2022
- Pick up a classic book: Guidance for healthcare ethics committeesThe most-reprinted book on the subject
- Read the landmark paper: Dynamic consent: a patient interface for twenty-first century research networksCited 669 times
- Go sideways: Biobank ethicsA closely related topic
- Go sideways: BiobankA closely related topic
📖 Definitions
No dictionary entry for this exact phrase.
🏆 Landmark papers (most cited)
Dynamic consent: a patient interface for twenty-first century research networks
Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
Reflections on dynamic consent in biomedical research: the story so far
Dwarna: a blockchain solution for dynamic consent in biobanking
Dynamic consent management for clinical trials via private blockchain technology
Dynamic Consent: An Evaluation and Reporting Framework
‘CTRL’: an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research
Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process
🆕 Influential since 2022
A rapid review of the benefits and challenges of dynamic consent
Dynamic consent and personalised medicine
Dynamic governance: A new era for consent for stem cell research
Smart contract empowered dynamic consent: decentralized storage and access control for healthcare applications
Sovereign Digital Consent through Privacy Impact Quantification and Dynamic Consent
📚 Books worth reading
Guidance for healthcare ethics committeesD. Micah Hester, Toby Schonfeld · 2012
Notes from the MinefieldIrene L. Gendzier · 1998
The Conspirators HierarchyJohn Coleman · 1992- 📕Sexual Harassment and MisconductGina Robertiello · 2021
Qualitative Data AnalysisMatthew B. Miles, A. Michael Huberman · 2013- 📕Dynamics of Sexual ConsentLena Gunnarsson · 2024
The dynamics of disasterSusan W. Kieffer · 2013
Advice & dissentSarah A. Binder · 2009
Ranked by number of editions on Open Library, a rough measure of how lasting a book is.
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